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Aging and Down syndrome

Articles by The National Down Syndrome Society and Other Sources

Adults with Down syndrome are now reaching old age and are commonly living into their 50s, 60s, and 70s in many cases. While many exciting milestones accompany growing older, old age can also bring unexpected challenges for adults with Down syndrome, their families, and caregivers. To enjoy all the beautiful aspects of a longer life, it is vital to be proactive and learn about issues that may lie ahead. The Resource Page contains practical information and resources.

A Health & Well-Being Guidebook

Adults with Down syndrome, along with their families and caregivers, need accurate information and education about what to anticipate as a part of growing older, so they can set the stage for successful aging. The purpose of this booklet is to help with this process. It may be used by families, professionals, direct caregivers, or anyone concerned with the general welfare of someone with Down syndrome. Read more.

Resource Guide

A Guide for Families Caring for Someone with Dementia and Intellectual/Developmental disability. Read more.

National Task Group on Intellectual Disabilities and Dementia Practices (NTG)

The National Task Group on Intellectual Disabilities and Dementia Practices is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia - as well as their families and friends – are taken into account.


Find resources here

NTG - Early Detection and Screen for Dementia
The NTG released the NTG-Early Detection Screen for Dementia (NTG-EDSD) which was developed in response to requests by family caregivers and agencies for a tool useful to record observations of changes in function.

IDD and Dementia ECHO

Echo Spring 2023 Series

Other IDD Echo Series