Saturday Seminars Series
The DSALA hosts year-round seminars on specific topics via Zoom. Remember to RSVP when you plan to attend. Additional learning materials shared by the speakers will complement the workshop content. Attending the workshops is essential to gain a thorough understanding of each subject. Presenters have the authority to decide on the distribution of materials, which will be given exclusively to attendees. Previous seminars have covered subjects like:
- Independent Educational Assessments for children with Down syndrome
- Reading Workshops
- Dental Concerns in Children with Down syndrome
- Managing challenging behavior in children with Down syndrome using applied behavior analysis
- Conservatorship
DSALA does not endorse any agency or services offered by our presenters. These workshops are offered as a gesture of goodwill to our DSALA families.
Upcoming Saturday Seminars
Assistive Technology Assessment Process
Zoom Saturday Seminars
Date: Saturday, August 24, 2024
Time: 10 AM - 11:00 AM
RSVP
Assistive Technology Assessment Process
Are you considering whether your child could benefit from assistive technology? Join us to learn about the laws that pertain to assistive technology devices and services, how to request an AT assessment, what that process looks like, as well as ideas for writing IEP goals pertaining to assistive technology, and a list of helpful resources.
About the Presenter
Elizabeth Ortega from Team of Advocates for Special Kids (TASK): TASK helps families navigate special education, disability services and assistive technology. We provide families with emotional support, information, and direction. When needed, we refer them to other agencies for additional services. Our goal is to promote cooperation between families and schools to help kids succeed.
Conservatorship
Zoom Saturday Seminar
Date: Saturday, September 21, 2024
Time: 10 AM - 11:00 AM
RSVP
Conservatorship
Adam Grant of Stonewood Law Group P.C. will be presenting a general overview of the Conservatorship process, it’s implications on the Conservator and Conservatee, and some of the other options available to those looking to protect a loved one or family member. More specifically, the materials will focus on Limited Conservatorships, Conservatorships of the Person and Conservatorships of the Estate. At the end of the presentation, listeners and viewers should understand how Conservatorships in general largely function and how to take steps toward initiating a Conservatorship.
Presenters:
Adam Grant, an Estate Planning Attorney at Stonewood Law Group P.C. in Los Angeles, specializes in Estate Plans, Special Needs Trusts, Conservatorships, and Probate. He prioritizes client education. Stonewood Law Group P.C. offers professional Estate Planning services in the SoCal region, with over a decade of experience. Contact them at (818) 347-5800.
Past Saturday Seminars
Did You Miss Our Previous Saturday Seminars?
Did you miss one of our past seminars but want to catch up? You'll find a link to watch the recording at your convenience if the recording is available.
Stay connected with us through our newsletter and social media channels for updates.
We look forward to seeing you at our next seminar!
Common Medical and Behavioral Health Conditions Associated with Down Syndrome
Zoom Saturday Seminars
Date: Saturday, July 20, 2024
Time: 10 AM - 11:30 AM
Watch Presentation Here
Ask the UCI Experts About Down Syndrome
This panel presentation will provide an overview about the common medical and behavioral health conditions associated with Down syndrome across the lifespan. There will also be an extended time for questions and answers by the UCI experts in Down Syndrome. Families of individuals with Down syndrome of any age are invited to attend.
Presenters:
Dr. Christy Hom
Christy Hom, Ph.D., ABPdN is a pediatric neuropsychologist, Associate Clinical Professor of Psychiatry and Human Behavior, and the Co-Principal Investigator of several research studies on Down syndrome being conducted at UC Irvine and CHOC Hospital. She has been evaluating and treating children and adults with intellectual and developmental disabilities for 30 years at UCLA, Johns Hopkins University, University of Michigan - Ann Arbor, CHOC Hospital, and UCI.
Dr. Emily Dow
Dr. Emily Dow is a semi-retired family physician who practices at the UCI Family Health Center in Santa Ana. She has been at UCI for more than 23 years, and her career focus has been the care of underserved communities, including individuals with Down syndrome and other intellectual and developmental disabilities.
Dr. Minodora Totoiu
Dr. Minodora Totoiu is a pediatric neurologist at CHOC Children’s Hospital and an Associate Clinical Professor in the Department of Pediatrics at UC Irvine. She is currently serving the clinical needs of children with Down syndrome at CHOC and since 2012 she has been participating in adult Down Syndrome research programs at UCI.
Advocating for your child with disabilities
Zoom Saturday Seminar
Date: Saturday, June 15, 2024
Time: 10 AM - 11:00 AM
Advocating for your child with disabilities
Advocating for a child with disabilities can be an empowering and important role for a parent. By attending this workshop with Angela Reid, you will gain valuable insights on how to effectively advocate for individuals with disabilities. Whether it's navigating the education system, understanding their rights, or connecting with resources, this workshop will equip you with the knowledge and tools needed to become a strong advocate for your child. Join us in this empowering journey of advocacy and make a positive impact in the life of your loved one.
Presenters:
Angela Reid, a dedicated advocate with 25 years of experience, educates on Down syndrome. She obtained degrees in Special Education and Applied Behavior Analysis. Angela advocates for full inclusion in education and has presented at conferences. Angela trains educators and BCBA's, created the Texas School Threat Assessment protocol, and holds various certifications in education and behavior analysis.
Understanding the IHSS Program
Zoom Saturday Seminar
Date: Saturday, May 18, 2024
Time: 10 AM - 11:30 AM
Understanding What Is OCRA and the IHSS Program
They will provide an overview of the Office of Clients' Rights Advocacy (OCRA) and the In-Home Supportive Services (IHSS) program, the types of services offered, suggestions on the types of information you should collect for the application, how to submit your application, what to expect at the home visit, the next steps, and your right to appeal if you disagree with a decision made.
Presenters:
Wilmary Torres is the Clients’ Rights Advocate and attorney who works with North Los Angeles County Regional Center consumers and their families to advocate for the rights of people with developmental disabilities. Wilmary believes that OCRA’s services ensure that clients and their families receive the necessary services and support.
Fatima Perez is an Assistant Clients' Rights Advocate who also works with consumers and their families at the North Los Angeles County Regional Center, helping consumers with developmental disabilities and their families. She coordinates workshops, provides support and resources, and believes in the importance of OCRA's work for client empowerment.
Grief and Disability
Zoom Saturday Seminar
Date: Saturday, April 20, 2024
Time: 10 AM - 11 AM
Grief and Disability
Many parents of children with Disabilities experience feelings of guilt, sadness, frustration, and anger. This talk will help you understand where these feelings come from and how to manage them. We will explore the process of Grief that many families experience after their child is diagnosed with a Disability. We will learn that this process is a typical experience, sometimes necessary, that is part of a healthy, strong family.
Presenter Mariano Sanz
Parent of a beautiful 34-year-old young woman with Down Syndrome. He was born and raised in Spain, where he graduated from the Universidad Pontificia in Salamanca with a Master's in Psychology and an MFT. He moved to the USA 35 years ago to work as a bilingual educator. He has worked as a Classroom Teacher and a school Counselor for several school districts in the South Bay.
Speech Intelligibility Issues in Down Syndrome
Zoom Saturday Seminar
Date: Saturday, March 16, 2024
Time: 10 AM - 11 AM
Topics Covered:
What is Apraxia of Speech?
Differences Between Apraxia and Other Speech Sound Disorders
Other Factors that Impact Intelligibility
School-Based Treatment Options
About the presenter
Samira Khiantani, M.S., CCC-SLP is a licensed Speech-Language Pathologist who works with a variety of individuals with speech and language difficulties including the Down syndrome population. She is a knowledgeable and passionate resource dedicated to her field. She also mentors graduate students in a clinical setting, preparing the future generation of SLPs.
Navigating the Individualized Educational Plan (IEP) Process
Zoom Saturday Seminar
Date: Saturday, February 10, 2024
Time: 10 AM - 11 AM
Join us for an insightful presentation on the Individualized Educational Plan (IEP) process, where we'll explore how to request an assessment, and the steps that follow. Our presenter, Jessica Ghermezi, is passionate about helping parents navigate the world of IEPs, drawing on her experience as a School Psychologist in the charter school setting for over 13 years and more recently as a Licensed Educational Psychologist working in private practice.
During this session, Jessica will share practical advice to guide you through the IEP journey. Learn how to set achievable goals, collaborate effectively with educators, and ensure your child receives the support they need to thrive in school. Discover the power of individualized education plans when done effectively and how they can make a positive impact on your child's learning experience. This presentation is your chance to gain valuable insights and become a confident advocate for your child's education. Let's work together to create a path to success tailored to your child's unique abilities!
Letter of Intent Workshop
Zoom Saturday Seminar
Date: Saturday, January 13, 2024
Time: 10 AM - 11 AM
Letter of Intent Workshop: Resource for Families
This presentation is an interactive workshop. Have your computer or pencil and paper ready! It is our goal that you will leave this workshop with the first draft of your Letter of Intent completed.
About the presenter
Nick Wallace, ChSNC, RICP is a financial advisor specializing in helping families across the United States plan for their loved one's future with special needs. Nick is on a mission to create more secure outcomes for individuals with disabilities. Nick serves as a co-guardian and future trustee for his brother, Aaron, who has physical and intellectual disabilities.
Regional Center Services: What You Need To Know
Date: Saturday, November 18th
Time: 10 AM – 11 AM
Many services are available to Californians with developmental disabilities at each stage of their lives. Whether it's early intervention services for infants and toddlers with developmental delays or vocational training and job placement programs for adults, the Regional Centers in California provide a wide range of services to support individuals with developmental disabilities throughout their lifespan.
Learn more about:
- Common services for each age group
- Appeal process
- Self-determination program (Ages 3+)
- NEW - Coordinated family support service (Ages 18+)
- Electronic Visit Verification (EVV)
Presenters:
Maria De Jesus Rodriguez has worked at the North Los Angeles County Regional Center for five years as an Early Start Service Coordinator and currently as the Parent & Family Support Specialist.
Raphael Muñoz has been a service coordinator at NLACRC in the adult and transition units since 2016. Before joining NLACRC, he served the East Los Angeles Region catchment by providing Early Intervention, Adaptive Skills, and Behavioral Therapy services. Raphael also worked as a Family Advocate in the Head Start program, assisting families from diverse backgrounds.
Reading Workshop
Zoom Saturday Seminar
Part 1: Saturday, September 23, 2023
Part 2: Saturday, October 14, 2023
Join us for two 90-minute presentations on the Whole Child Reading Method, giving you a quick-start guide to teaching reading to our learners of any age. Whether your learner is 4 or 40, there is a way to success that works most efficiently, and these two classes will focus on how to get there. Participants must attend both presentations, as they offer different information, and one builds on the other.
What you will learn:
- Understanding the basis of the Whole Child Reading method, which is "We go in through the heart and teach to the brain."
- Learning how to create those "heart" materials and using the ready-made Special Reads materials.
- Learning the strategies of "teaching to the brain" and correctly using hemisphere learning techniques has long proven effective for fast and permanent retention.
- Understanding the learning weakness and strengths of learners with Down syndrome and how to accommodate both.
- Understanding the phonics vs. whole words debate and learning which to use and when.
- Teaching to the dual diagnoses of DS/ASD (autism) and DS/CAS (apraxia) and more...
About the speaker
Natalie Hale is an award-winning author, an innovative educator, a parent of an adult son with Down syndrome, and for over 30 years, a national and international speaker on teaching reading to learners with Down syndrome and other developmental delays. Natalie lives in Los Angeles and continues to travel and teach parents and educators across the country and borders through her reading workshops in person and online.
Sample of her list of books:
- Whole Child Reading: A Quick-Start Guide to Teaching Learners with Down Syndrome and Other Developmental Delays
- Down Syndrome Parenting 101: Must-Have Advice for Making Your Life Easier (Best Special Needs Parenting Book 2012 About.com Reader's Choice Award);
- Managing My Money: Banking and Budgeting Basics (Finalist in the USA "Best Books 2011" Awards).
- Oh, Brother! Growing Up with a Special Needs Sibling was published by the American Psychological Association.
Special Education Fall Update
Zoom Saturday Seminar
Saturday, August 26, 2023
10:00 AM – 11 AM
This presentation will address IEPs, assessments, and the latest special education issues post-COVID-19.
About the presenter
Dina Kaplan, Attorney with Vanaman German, LLP has been practicing law for more than 40 years. She has an extensive litigation background and has been protecting the rights of children with disabilities for the past 25 years. She represents families in Due Process matters against school districts as well as in Regional Center and Adoption Assistance Program (AAP) matters. Dina is proud to be a member of the incredible legal team at Vanaman German LLP.
Dina is a frequent speaker at legal conferences, seminars, and parent groups. She is also the Executive Director of The K.E.N. Project, a non-profit organization that provides parent support and education for parents of children with disabilities.
Dina is also the mother of Brandon, a young adult with multiple physical and developmental disabilities. Brandon has taught her a love she never knew existed! Brandon has also taught her not only the challenges and frustrations that accompany raising a child with special needs but also the incredible joy and rewards that come with each accomplishment and milestone. Brandon continues to inspire Dina to be an outstanding advocate for children with special needs.
New Developments in Managing Stress and Self-Care
Zoom Saturday Seminar
Saturday, July 15th, 2023
10:00 AM - 11:00 AM
This presentation will address new developments in the science behind stress, stress management, and the mind-body connection. How prolonged and chronic stress impacts both mental and physical health will be discussed. Additionally, strategies involving simple cognitive and behavioral shifts to interrupt and stop the stress response will be explored.
About the Presenter:
Deborah Buttitta, Psy.D., LMFT, is an Assistant Professor in the marriage and family therapy program at California State University, Northridge (CSUN). She has over 25 years of experience educating, training, and supervising in the field of marriage and family therapy. She is also a licensed marriage and family therapist and has been in clinical practice for over 25 years, supporting individuals, couples, and families with various mental health and stage-of-life issues. Dr. Buttitta collaborates with multiple partners within the CSUN community, including, the Teaching Learning and Counseling Consortium, Strength United, Family Focus Resource Center, Mitchell Family Counseling Center, and Project Rebound.
Social and Life Skills Apps
Zoom Saturday Seminar
Saturday, June 17, 2023
10:00 AM – 11 AM
Many kids and adults with disabilities struggle with social and life skills.
Join this session, in which we will demonstrate apps that can help with these skills. These apps focus on personal grooming, household chores, telling time, dialing 911, social skills, and more. Apps for various ages will be shown.
TASK is a nonprofit organization that helps families navigate:
- Disability services
- Special education
- Assistive technology
Speech & Language Difficulties in Individuals with DS
Zoom Saturday Seminar
Saturday, April 15, 2023
10:00 am - 11:00 am
This presentation will cover:
- Specific speech and language difficulties that are commonly seen in individuals with Down syndrome
- The importance of early intervention
- Strategies for parents/caregivers to communicate effectively at home
About the presenter
Samira Khiantani, M.S., CCC-SLP is a licensed Speech-Language Pathologist who works with a variety of individuals with speech and language difficulties including the Down syndrome population. She is a knowledgeable and passionate resource dedicated to her field. She also mentors graduate students in a clinical setting, preparing the future generation of SLPs.
Alternatives to Conservatorship, Reform Bill 1663, & Supported Decision Making
Zoom Saturday Seminar
Saturday, March 25, 2023
10:00 am11:00 am
Watch Presentation Here
- Understand options that are available instead of a conservatorship and how a person can use supported decision-making to make decisions that are right for individuals with developmental disabilities.
- Learn about the protections and opportunities AB 1663 provides for people to have more control over their lives while ensuring conservatorships are available to those who need them.
Speaker
Sofia Cervantes
State Council on Developmental Disabilities Advocate
The State Council on Developmental Disabilities (SCDD) Vision
The Council advocate, promote, and implement policies and practices that achieve self-determination, independence, productivity, and inclusion in all aspects of community life for Californians with developmental disabilities and their families.
Special Needs Planning
Zoom Saturday Seminar
Saturday, February 18, 2023
10:00 am11:00 am
This workshop is designed to provide families and professionals with confidence and clarity around planning for the future of a child or loved one with special needs.
Special Needs Planning:
-Why Plan?
-Nick’s Personal Experience
-ABLE Accounts
-Special Needs Trusts
-Financial Strategies
-Open Q & A
About the presenter
Nick Wallace, ChSNC, RICP is a financial advisor specializing in helping families across the United States plan for their loved one's future with special needs. Nick is on a mission to create more secure outcomes for individuals with disabilities. Nick serves as co-guardian and future trustee for his brother, Aaron, who has physical and intellectual disabilities.
Dental Issues & Down Syndrome
Zoom Saturday Seminar
Saturday, January 21, 2023
10:00 am - 11:00 am
Dental Issues & Down Syndrome
Individuals with Down syndrome have the same oral health problems as others. However, some issues tend to be frequent and severe. Early professional treatment and daily care at home can reduce the severity and allow people with Down syndrome to enjoy a healthy mouth.
Topics
Dental hygiene for individuals with Down syndrome
The importance of periodic exams
Treatment options
About our speaker
Dr. Bob Valdez attended dental school at the Universidad Autonoma de Guadalajara. He worked in a Post-graduate Pediatric Residency at the University of Southern California, earning his certificate in Pediatric Dentistry in 1985. He established his dental clinic in the Uptown Whittier District in 2008. In addition to pediatric dentistry services, he specializes in treating special needs children.
LIVING OPTIONS FOR INDIVIDUALS WITH INTELLECTUAL OR DEVELOPMENTAL DISABILITIES
Zoom Saturday Seminars
Saturday, October 15, 2022
10 AM
Community Options Integrated Services (COIS) will discuss living options for those with intellectual or developmental disabilities. COIS provides the most comprehensive information for those interested in learning more about creative residential support options. This presentation will provide a clear and concise overview of the varied living arrangements available.
about COIS
Community Options is a family home agency that recruits and trains families wishing to share their homes with individuals needing extra support. They offer more of a person-centered program than a typical group home placement.
about our speakers
Ingrid Rushing is the founder and CEO of Community Options Integrated Services, which has pioneered the development of adult family home services in California. Prior to founding Community Options, Ingrid worked for two Southern California Regional Centers and was instrumental in developing solutions for advanced situational projects and creative resource development. Ingrid has also served on the Vendor Advisory Committee and the Strategic Planning Committee for the North LA County Regional Center. For her efforts, she was recognized with the Jenny Ratzinger award.
Timothy Lisagor has extensive experience working in the foster care system, ensuring quality care and placements. He was responsible for recruiting families and for monitoring their continued support of those served. Timothy has also worked as an employment developer identifying internships, volunteer positions, and employment for those served by the California Regional Center system.
Neurological Complications in Down syndrome
Zoom Saturday Seminars
Saturday, September 10, 2022
10 AM
Watch Presentation Here
Neurological Complications in Down syndrome: How to Identify and Protect
- Review common neurological complications in Down syndrome
- Review the most common stroke-related conditions that persons with Down syndrome exhibit with Moyamoya Disease and Cerebral Amyloid Angiopathy (CAA).
- Review the common signs and symptoms of Moyamoya disease and CAA, how to get diagnosed and what treatments can be used.
- Review a potential, non-invasive method to predict stroke before it happens
Early Identification can save lives!
About Jonathan D. Santoro, MD
Dr. Santoro serves as the Director of the Neuroimmunology and Demyelinating Disorders Program at Children's Hospital Los Angeles. He is also an Assistant Professor of Neurology at the Keck School of Medicine at the University of Southern California. Dr. Santoro completed his undergraduate, master's, and medical degrees at Tulane University. He subsequently completed pediatric and child neurology residencies at Stanford University School of Medicine with sub-specialty training in neuroimmunology and pediatric multiple sclerosis at Harvard Medical School. Dr. Santoro has clinical research expertise in inflammation related to cerebrovascular disease and neurocognitive disorders such as Down syndrome regression syndrome.
Down syndrome and Alzheimer's Disease
Zoom Saturday Seminar
Saturday, July 16, 2022
10 am
Watch Presentation Here
Eric Doran will be answering questions about the connections between Down Syndrome and Alzheimer's disease.
about Eric Doran
Eric Doran, MS, serves as manager for the UCI Down Syndrome Program, directed by Ira Lott, MD, professor emeritus of pediatrics and neurology. Mr. Doran holds a master's degree in genetic counseling. He has extensive clinical and research experience working with people with Down syndrome and their family members for the past two decades. He has published numerous important research findings on the link between Down syndrome and Alzheimer's disease.
about Sharon Trocki-Miller
Sharon Trocki-Miller is a Family Advocate. She spent five years on the State Alzheimer's Advisory Committee, advocating for people with disabilities. She ran a family support group for ten years at a program for adults with disabilities in North Hollywood. Along with an Alzheimer's Disease (AD) and Down's Syndrome (DS) support group for Alzheimer's LA. That group ran for five years and was cut short due to Covid. She recently started a new AD/DS support group with Alzheimer's LA that meets on the first and third Wednesday of each month. She is extremely grateful that she had the opportunity to be her sister's caregiver until she passed away from Alzheimer's.
Down Syndrome in Media
Zoom Saturday Seminars
Saturday, June 18, 2022
10 AM
Did your child with Down syndrome come with the “entertainment gene” on their extra chromosome?
Would you like to know more about print work, commercials, TV, and film opportunities for children and adults with Down syndrome and other disabilities? Gail Williamson, a talent agent at KMR in North Hollywood for the past 9 years and previous Executive Director of the DSALA, will come and share what’s happening with disability inclusion and authenticity in the media. Get all your questions answered about the industry and decide if it’s something you and your child would be interested in. Parents of children with other disabilities are welcome too.
Special Needs Trusts
Zoom Saturday Seminar
Saturday, May 21, 2022
10 am
Special needs trusts are designed to enhance the quality of life of a person with a disability by maximizing their resources. It preserves eligibility for Supplementary Security Income (SSI) and Medicaid (which pay for food, shelter, and medical care). The special needs trust can then pay for all other things that make life better.
Presenter
Jonathan Leventhal, Professor of Law, California Attorney at Law, helps families plan for the future. He evaluates each situation and recommends the best options for each circumstance. Jonathan Leventhal is also a Professor of Law at the University of West Los Angeles School of law. He teaches Wills, Trusts & Estates to an eager group of Law Students in Los Angeles.
Limited Conservatorship
Zoom Saturday Seminars
Saturday, March 26, 2022
10 AM
Watch Presentation Here
Your child is turning 18 and becoming an adult, what you need to know to help them live their best lives
There are several types of conservatorships. One special type of conservatorship is called limited conservatorship. This is when a judge appoints a responsible person (called a conservator) to assist an adult with developmental disabilities (called a conservatee) who is unable to provide for her/his personal and/or financial needs.
Bet Tzedek Legal Services will present an informational workshop on what a conservatorship is and the steps to get one for your loved one with disabilities.
Social Security and Supplemental Security Income
Zoom Saturday Seminars
Saturday, February 19, 2022
10 AM
The Social Security and Supplemental Security Income disability programs are the largest of several Federal programs that provide assistance to people with disabilities.
The Office of Clients’ Rights Advocacy will present an informational workshop on Supplemental Security Income (SSI). This presentation will provide information about what SSI is, who is eligible for it, and how the appeal process works should your SSI application be denied.
